My mother recently turned 76. In 1990, she suffered a small heart
attack. The heart muscle only suffered very minor damage during
that attack. She suffers from what her doctor calls Syndrome X.
Following that heart attack, depression set in, her eating habits
became horrible, she refused to exercise, and her blood pressure
and cholosterol were already elevated continued to stay elevated.
She was also later diagnosed with Type 2 Diabetes.
In 2001 due to a cancer misdiagnosis, she had a kidney
removed. The kidney was not cancerous. Unfortunately, the remaining
kidney had less than 10% function. For years she was able to
maintain with Procrit to keep her hematocrit levels up.
In 2005 she was diagnosed with congestive heart failure and
had a pace maker put in. Her health was otherwise relatively
stable, until May of 2008.
In May of 2008 she was hospitalized due to severe shortness
of breath. She'd quit smoking in 1990 following her initial heart
problems, and her chest x-rays were always clear. In May it was
determined that she need to have her aortic valve replaced and the
surgery was scheduled for June 2, 2008.
My mother underwent the initial surgery successfully.
However, her post-operative course has been nothing short of
disasterous.
The surgery, as anticipated, damaged her remaining kidney, so
that it has no function and she now has to undergo dialysis 3 times
per week.
One week post-operatively she suffered from something called
ICU Psychosis where she had a complete mental breakdown. The
paranoia and flights of fancy were overwhelming and have been
continually devastating. She no longer knows really who she is,
where she's lived for the last 50 years, who her family members
are, sadly the true, real memories are gone. They've been replaced
with fanciful dreams of trips to India, people she's never known
and at one point, she even threatened to kill me, her only
daughter.
At week 2 she was placed on the general floor, where her
health continued to go downhill. The wire holding her ribs together
had become loose, the surgeon had to go back in and fix that, and
at the same time placed a wound vac in her chest, which remained in
place for 4 weeks, because the incision site was infected. At week
3 they placed her back in the ICU where her health continued to
deterioriate.
Between weeks 3 and 16 in the ICU, not only did she go into
septic shock, but she came down with a fungal infection in her
blood, her blood pressure bottomed out too many times to count, her
heart quit working altogether on several occasions, she was
over-dialysised on numerous occasions, her lungs repeatedly filled
with fluid, to the point where a drain was placed. Her chest was
reopened numerous times for continuing problems with the aortic
valve replacement surgery. She also underwent hundreds of x-rays of
her lungs, stomach, heart, all for of ongoing problems
post-operatively.
In August, in spite of and against the wishes set forth in
her Advance Directive and Living Will, she was placed on a trach
ventilator and a feeding tube. Sometime between August and October
she was also placed on another wound vac, this time on her back for
a decubitus ulcer. The paranoia and dementia continue unabated.
On October 2, 2008, despite how poorly she was doing
medically, because she had exhausted all her Medicare benefits, she
was transferred out of the hospital, to a long term care facility.
She was placed into a facility, that it's hard to imagine how they
maintain their Joint Commission Accreditation and Gold Star
Provider status.
This facility allegedly has expertise in getting patients
weaned from ventilators. It's now November 22, 2008 and she's still
on the ventilator.
In mid-October they had to remove the feeding tube and
dialysis ports because once again my mother had come down with an
infection and they couldn't determine the source. She was placed on
a naso-gastric tube and almost bled out on the day they removed the
dialysis ports.
Because she is essentially non-mobile and the staffing is so
poor, she is relegated for hours to lay in her own waste; there are
no bed alarms, she has been found sliding out of bed, and call
buttons go ignored for hours at a time, along with patient and
family requests for help.
On November 17, 2008, we were once again advised that the
Medicare benefits available for long term care were exhausted and
that she was being transferred to another facility, this time
out-of-state, as there are no facilities in Florida that can handle
this type of patient.
My mother's secondary insurance, Blue Cross/Blue Shield, that
she has paid for every month for the last 24 years as a Federal
Employee Retiree, has authorized an additional 14 days at the
facility before she is transferred out.
My mother is now ventilator dependent, on a feeding tube,
still on the wound vac, needs dialysis every 3 days, is incontinent
of bladder and bowel, and the paranoia and dementia only get worse.
Prior to her surgery, while she was somewhat forgetful, but
who isn't at 75-76, she was an avid -book a day reader, and worked
several crossword puzzles daily. While physically she wasn't in
good shape, her mind was still very active with no dementia or
parnoia.
The insurance industry has dicatated the health care that
will be provided and for how long and the hospitals and physicians
only care about getting paid, and once they don't get paid, they
dump the patients.
My hope and wish, as this point, is that by the grace of her
higher power, that mother be allowed to die. It won't be with any
dignity, we treat our animals better, but at least she would be out
of her misery.
My mother's story doesn't have a good outcome and it will
only get worse from here.
In response to assignment:
Life after heart trouble