I will never forget the day when the doctors told me they
thought my precious little boy had Down Syndrome. I had just had
him. He came a month early so a neonataligist was there in the O.R
waiting to check him out and make sure he was ok.
The doctor that was taking care of him while they sewed me
back up came over and asked if there was anyone in my family with
Down Syndrome. I told her no and asked why. She said that me son
had some facial features and other features on him that are
associated with DS. I was stunned. I was only 21. I thought that
only happened to older women who had babies. I had done sonograms
and no one even hinted that something might be wrong with him.
They did the genetic testing. And three days later it came
back. I knew it was bad news when the doctor, nurse and chaplain
all came to talk to me at the same time. They informed me that the
test had came back positive for Trisomony 21 (DS).
I could not believe my ears. I was devestated. All I could
think about was my poor little boy. I took it pretty hard for the
first week. But after that it was time to just accept it and move
on to getting him better and out of the NICU. He was in the NICU
for a month learning to eat from a bottle.
Once He finally came home it was a long year of doctors
appointments, specialist, and therapy. Jeramia is now four years
old. He is walking, starting to talk, he is almost completely potty
trained. His doctors are shocked at how advanced he is. I believe
he is that advanced because we have never treated him like he is
anything but "Normal".
He has chores, he is expected to obey us. We have never used
his disability as a excuse for him. He is one of the most loving
little boys I have ever seen. Everyone who meets him fall in love
with him right away. And he will run up to almost anyone and give
them a hug.
People have asked me if I could make him "Normal " would I.
And my answer is always the same. NO. My son has been such a
precious blessing to our lives. He is truely a little angel (most
of the time:) )
I feel truelly blessed to have him in my life just the way he
is.
In response to assignment:
Life with Down syndrome