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Jeramia My DS Angel
Click to view subwife734's profile Posted by: subwife734 // 2 months ago // viewed 181 times
Norfolk, Virginia // embed media

I will never forget the day when the doctors told me they thought my precious little boy had Down Syndrome. I had just had him. He came a month early so a neonataligist was there in the O.R waiting to check him out and make sure he was ok.

The doctor that was taking care of him while they sewed me back up came over and asked if there was anyone in my family with Down Syndrome. I told her no and asked why. She said that me son had some facial features and other features on him that are associated with DS. I was stunned. I was only 21. I thought that only happened to older women who had babies. I had done sonograms and no one even hinted that something might be wrong with him.

They did the genetic testing. And three days later it came back. I knew it was bad news when the doctor, nurse and chaplain all came to talk to me at the same time. They informed me that the test had came back positive for Trisomony 21 (DS).

I could not believe my ears. I was devestated. All I could think about was my poor little boy. I took it pretty hard for the first week. But after that it was time to just accept it and move on to getting him better and out of the NICU. He was in the NICU for a month learning to eat from a bottle.

Once He finally came home it was a long year of doctors appointments, specialist, and therapy. Jeramia is now four years old. He is walking, starting to talk, he is almost completely potty trained. His doctors are shocked at how advanced he is. I believe he is that advanced because we have never treated him like he is anything but "Normal".

He has chores, he is expected to obey us. We have never used his disability as a excuse for him. He is one of the most loving little boys I have ever seen. Everyone who meets him fall in love with him right away. And he will run up to almost anyone and give them a hug.

People have asked me if I could make him "Normal " would I. And my answer is always the same. NO. My son has been such a precious blessing to our lives. He is truely a little angel (most of the time:) )

I feel truelly blessed to have him in my life just the way he is.
In response to assignment: Life with Down syndrome
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